Developing a New, Digitally Integrated Research Infrastructure: Results of the Macau Biobank Survey

Abstract

ABSTRACT Introduction Biobanks are significant research and reference infrastructures housing the collection of specimens and associated data for future research. Considering the impact of the recent COVID-19 pandemic, the Macau Special Administrative Region government has determined the need to diversify its economy and set a target ratio that increases the high-tech, digitally integrated research industry contribution to the gross domestic product (GDP). Methods: An initial benchmarking survey containing 12 questions to discuss the potential establishment of a biobank in Macau was presented digitally by mobile platforms to over 100 local healthcare and scientific professionals to initiate discussion. The aim was to initiate discussion on biobanking practices while acknowledging security and health concerns, without compromising legal, social–ethical, and/or ethnic boundaries within the region. Results: Out of 47 respondents, 41 agreed that the establishment of a regional and digitally integrated biobank would benefit Macau by advancing its scientific research support. Reflecting an awareness that such infrastructure is crucial for facilitating research and offering developmental opportunity for Macau. Conclusions: In alignment with the direction expressed in China, the survey responses have initiated initial discussions regarding the creation and potential of a regional, digitally integrated biobank for biological samples and data, including additional information from future research projects. However, a more detailed feasibility study is warranted to address any inherent bias in responders, given the inclination towards digital-savvy individuals.

Ähnliche Arbeiten