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Data Ethics Policy Trends for Human Subjects Protections in the Era of the AI Bill of Rights
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2024
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Abstract
For institutional review boards (IRBs) and human research protection programs (HRPPs) specifically, the ubiquity of artificial intelligence (AI), machine learning (ML), and data mining (DM) within research today have created various and significant challenges for protections of human subjects and human subjects' data, including personally identifiable information, in research regulated by U.S. federal agencies. This chapter presents an analysis of the Blueprint for the AI Bill of Rights released in September 2022 by the White House Office of Science and Technology Policy in the context of human subjects' research and PII to address the mounting data ethical issues surrounding AI, ML, and DM, and the implications for IRBs and HRPPs for the protection of human subjects' data.
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